Podcast on the Curiosity Hour

A huge thank you to Dan Sterenchuk and Tommy Estlund for the invitation to join them for a podcast on the Curiosity Hour.

Unless you come to hear me speak, you only know me through the words I type on Facebook, on this blog, on Pinterest, Goodreads, and comments on Amazon. Here’s a chance to hear my voice.

 

I love to talk about our story, mental illness, and my faith. I speak with libraries, organizations, churches, and book clubs.

Contact me to schedule an event.

virginiapillars@gmail.com

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Why? I don’t know, but, woot! woot!

Every once in a while, I check different sites for my book. Since many readers go to Amazon to post reviews, I frequent it. (Thank you to all who have posted reviews!)

I just checked and Amazon put my book on sale for the lowest price I’ve seen. Today Amazon offered it for $8.90! That’s less than half-price! Broken Brain, Fortified Faith.

I’m not sure why, but I love it! I know that readers can benefit from this. So, feel free to share the link or buy the book and give it to anyone who you think may want to learn how one family coped with mental illness. Recovery can happen. It was hard, but oh, so worth it!

Thank you, Amazon!

 

Gifts …

In the past twelve hours, I’ve received gifts that didn’t wait for later in the month.  These gifts lifted my spirit.

There were so welcome after the past of days of my melancholy attitude. It started with a phone call that left me disappointed in someone and then morphed into a giant of oppressing sadness. I couldn’t shake the “poor me” thoughts that pounded at me.

Until the gifts from yesterday…

First, I spent part of the afternoon with people, which always lifts my mood. Yes, I’m an EXTRAVERT. I get my energy from people. The past twelve hours recharged me and changed my attitude. I needed a major gratitude adjustment.

First I sat next to a friend as I watched a Jr. High Basketball game. I hadn’t expected to see her there, so we chatted and caught up with each other’s lives. Pure gift.

From there I went to a holiday party with my local NAMI (National Alliance on Mental Illness) chapter. I spent the evening with friends I’ve known for years, and the new ones I met as I taught a twelve-week class, Family to Family, this fall. The best part of the evening came as I heard about the successes of their loved ones. I rejoice as I hear the words, “doing well,” “has a job,” “great relationship between us.” So many times I’ve heard, “The class changed my life. It was the best thing I’ve ever done for my loved one and me.” What a gift!

This morning when I checked social media, I approved the tag for this Facebook post, Free the Strange by Andrea Berns. This courageous woman shared her journey to wellness. Her talents shined through her words, as well as her determination to work towards recovery. She asked me to write the forward for her chapbook. What an honor! Congratulations to Andrea, and to all the success stories that we need to tell and celebrate with them.

Gifts come in all shapes, sizes, and look different to everyone. I received good news all around me yesterday, and I am grateful for them.

 

An opened gift.

Broken Brain, Fortified Faith released a little over a year ago. I intended to write this post that day, but life happened. Today, almost two months later, it still feels amazing.

I remember how I felt on September 5, 2016, the day before it’s official release. The anticipation seemed like that of little kid on Christmas Eve. I knew the tree had a package under it with my name on it. But, I didn’t know what it contained. I hadn’t asked for anything, not really. I just knew that the gift held something wonderful.

I began the release date of September 6, 2016, at Mass in a neighboring parish. I had invited my friends and family to join me. My heart swelled as many of them surrounded me to worship together. Gratitude overflowed. I didn’t expect such a  brief journey from inexperienced writer to published author. It took one book query, one book proposal, and one publisher to propel me from “I want to write a book” to” I’m a published author.” For that, I thank my author friends along the way who mentored me.

After Mass, we gathered around my table to share coffee and homemade muffins. I felt loved. And excited.

Fast forward. On the anniversary date of the book’s publication, I went to Mass, again in a neighboring parish. Not the same one as last year, but one close by. I spent the rest of the day at home. But I reflected on the things that occurred over the past year. Again, my heart filled with gratitude.

I’ve had some amazing experiences, met wonderful people, listened to the heartbreaking stories of others, and I hope, brought awareness to mental illness and the effect it has on families.

I remember when Amber lived in our home and still very ill with the symptoms of schizophrenia. I didn’t think she’d ever work full-time again. She worked hard to move into recovery and has stayed there for eight years! I’m so proud of her. I love it when I’m wrong.

Is it easy? No, absolutely not. But, she pushes forward in spite of setbacks and frustrations.

Last month, I celebrated the anniversary of the book publication, but I mostly I celebrate my daughter and my faith in God. I feel he walks beside me. I just need to stay focused on what is important to me – my faith, my family, and my friends.

In the past year, our story received the Selah Award for Best Memoir and the CWG Seal of Approval. What a thrill both awards gave me! Me, an inexperienced writer, who through the grace of God, wrote a book and published it. Again, I’m overcome with gratitude.

Here’s a link to the reviews that have posted on blogs since it’s publication.

Enjoy.

by Meagan Frank

Different Dream Parenting.

CWG Book Blast

Jeanie Heimann

Jocelyn Green

Catholic Reads

Mary Potter Kenyon

Franciscan Mom

Jeanie Egolf, Author of Molly McBride and the Purple Habit

Happy Anniversary, Broken Brain, Fortified Faith. You’ve been a gift.

Thanks for stopping by today. Virginia

 

Happy Mother’s Day to me.

 

My daughter  Amber has schizophrenia and I’m glad I’m her mom.

“She’s lucky to have you for parents.” “She’s doing well because of you.”

I’ve heard this often. I usually answer them, “I’m glad I’m her mom.”

Schizophrenia tried to steal Amber from the life she envisioned for herself. Her brain disorder bombarded her with symptoms after she graduated from college and headed into the world to follow her dreams. Paranoia, delusions, visual and auditory hallucinations, distorted thinking, and confusion crippled her for many harrowing months. As she spiraled out of the reality I knew into a one that made no sense, I thought I lost my only daughter forever. The relationship I envisioned for us slipped away as the whirlpool of mental illness sucked her away.

Through treatment, things changed. She entered the recovery stage and manages her symptoms through medication and self-care. She works full-time, lives on her own, manages her own affairs, and leads a social life that makes me tired.

Thirteen years later, I have my daughter back. My husband, Roy and I have an amazing daughter. And I feel that I gained a confidant and friend. As Mother’s Day approaches, I look back and see how our relationship evolved from mother/daughter through caregiver/patient, back to mother/daughter and now – friend.

Amber and I call each other almost daily. We talk about our day, the latest book we’ve read or movie that we’ve watched. We share our thoughts about faith, situations around us and giggle over silly stories. I ask her for advice and vice versa. But beyond my conversation partner, I look at where we’ve been and I am grateful.

I would not have chosen this off-road course of life for her, or for our family. But life throws things at us that we can’t avoid. In spite of the struggles, the stress, and the heartache we had, I found joy. I leaned on my faith to help me cope until I saw a glimmer of hope again.  I feel I became a better person because of her illness and the things I learned. Things I wish I knew years ago:

• Treat it like every other illness. Mental Illness is a biological illness. Scientists and researchers proved this. Molecular changes take place in the brain that are visible through brain imaging. So why did I feel embarrassed when Amber first became sick with the symptoms of schizophrenia? Would have I reacted this way to cancer or diabetes? Would I deny her illness? I think not.

• Accept the illness. “It’s not your fault” became part of my daily phrases I said to Amber. She didn’t choose this for herself. She didn’t understand why her world turned against her. I repeated “I love you, I’m here for you,” often. Once I accepted her brain disorder, I moved forward. I became her advocate, caregiver, and support.

• Early Treatment. Once I realized that Amber’s brain was in trauma, Roy and I took action. Early treatment made a huge difference in how her brain reacted to treatment. Once the doctors found the right medication, she began to heal. I learned that schizophrenia alters the brain by destroying the gray matter. Now, thirteen years later, she understands her illness and wants to stay in recovery.

• Support can help a loved one succeed. In our family, we moved Amber home during her recovery. After a lengthy hospital stay, I treated her as if she came home from a cancer treatment. I let her choose the level of activity she could handle. I didn’t ask for her help with household chores. I helped manage her medications and appointments. As she healed, she regained the stamina and wanted to do things for herself. With this came confidence in her abilities.

• Support for the family whose loved one faces mental illness makes a huge difference. Often time when tragedy strikes a family, the surrounding community reacts with compassion, support and financial help. But what happens to the family who deals with the tragedy of a serious brain disorder? Who steps in to hold them up? In our case, our families and friends did. They sent cards, letters, small gifts and visited Amber in the hospital. We received the same treatment, a friend even delivered a casserole! Now, support to other families ranks high on my list of priorities.

• Educate yourself. Education played a key role for me understanding mental illness. I learned what Amber faced by reading books on the subject. I also attended the Family to Family class through NAMI (National Alliance on Mental Illness) where I learned about the brain, symptoms, treatments and how to care for myself. I gained the tools I needed to cope.

• Be open. Once I shared my experience with others, I felt empowered and no longer isolated. My honesty allowed people to share their own journeys with me and we could support each other.
• Fight for them. I turned into a mama bear for her. I stood up for her when she couldn’t stand for herself. Roy and I sought the best treatment for her, switching providers if necessary. I filled out paperwork for her until she could do it for herself. Now, I get to stand to the side and root for her as she lives her life in a way that is similar to other women her age.
• Pray. I prayed daily for her and for me. For her to understand her illness. For the doctors to find the correct medicine to help her. And wisdom and strength for me to do the right things to help her recover.

Yes, I’m grateful Amber is my daughter. I understand schizophrenia is often relentless and vicious. And that not everyone wins the battle. But I’m grateful that if Amber is one out of one hundred people to have it, that she was born into our family. I’m glad we found the help she needed and that she recaptured a life of independence packed with work, friends, faith and family.

Happy Mother’s Day to me and to every mom who loves someone with a mental illness. We do the best we can! 

I want to pass it on…

Sometimes a song gets in my head and wants to stay.  The tune, the words play over and over in my mind in the quiet of my house. This morning it’s an old song from years ago called Pass it on. “I’ll shout it from the mountain top. I want my world to know. The Lord of love has come to me. I want to pass it on.”

Why the feeling? I spoke last week with a NAMI (National Alliance on Mental Illness) group about our story and my book. I shared with them snippets of the agony I had when our daughter became ill and later received the diagnosis of schizophrenia. I felt hopeless, frustrated and terribly alone.

Fortunately, for our family, we found the proper treatment at the right time, she wanted to get well and we worked together for her recovery. Today, twelve years later, she remains in recovery.

She battled back from the harsh symptoms and went on to live a life similar to other individuals her age. She works full-time, manages all her own affairs and medications, and leads a social life that makes me tired. To say I’m proud of her is an understatement.

Why did it work this way for our family?

I wish I could give a concrete answer. I can only relay what happened in our family. But,  I believe we had a miracle. Yes, a miracle.

• We turned to professionals who used their expertise. We had psychiatrists who cared and included all of us in the discussions.
• Amber had a wonderful counselor/therapist who walked closely with her for many years.
• We learned about the illness that invaded our child through classes by our local NAMI organization. Understanding helped me cope.
• Amber’s best friend came to see her and take her out socially every week. This action kept her immersed in social situations with people her age.
• Amber was driven. She pushed herself past what her dad and I felt comfortable with as she took two steps forward and then one step back.
• I leaned on my faith. I tried to center myself each day by reading and praying to strengthen me.
• We had the support of our families and close friends.

Yes, I think this formula produced what I feel is a miracle – professionals + education + support + faith + Amber’s determination = recovery.

It saddens me to know this isn’t the case for many families. As I volunteer with our local NAMI organization, or to speak to groups about our story, I hear heartbreaking stories of individuals who battle and the families who love them. I know they want the best for their loved ones, just as I did.

• To them, I want to bring hope that recovery is possible. To not give up, to continue to search for answers, to ask for help, to keep hope alive.
• To others who come to listen to an author, I want to bring awareness to an issue that affects 1 in 5 individuals and 1 in 4 families. These families need a community to stand with them, to let them know they are not alone in their journeys.
• I want to start conversations so everyone comes to understand it’s a brain disorder, not a character flaw. My daughter certainly didn’t choose to have schizophrenia.
• I want to pass it on:  hope, awareness, and support.

Just in case you’re interested in the song, here’s one link:

Pass it On by Kurt Kaiser

 

Welcome to Virginia Pillars’ blog.

Welcome to the thoughts and musings of Virginia Pillars. My goal for this site is to share with you, my readers, my journey through an extremely difficult time in my life. And like most experiences in life, it changed me. But for today, I want to share my incredible, and exciting news.

My book, Broken Brain, Fortified Faith: Lessons of Hope through a Child’s Mental Illness is complete. The release date is September 6, 2016, although at this writing I know Amazon began shipping copies last week.

You may be asking, what’s the book about?

It’s about my journey into the world of mental illness with my daughter. In 2004, her brain broke and I didn’t know what happened or how to deal with it. The book is my story, how I coped, what I felt, and what happened to our family as we learned of her diagnosis, schizophrenia and entered her world, so much different what we perceived it to be. We had to learn about mental illness, about her specific brain disorder, medications, therapies, and all the things that accompany schizophrenia.

But how did my story get to this stage? How did I go from a confused, and sometimes angry mother to a published book?  I have been given a gift, a wondrous, incredible, unexpected gift. I’m excited to share this with my followers, as well.

Thank you for visiting. Please check back again.

Virginia